Caregivers & Families Resources

Supporting someone with Functional Neurological Disorder can involve practical, emotional, and relational challenges. Family members and caregivers often help manage daily routines, communication, and support needs while also navigating their own limits and responsibilities.

This section of the Learning and Support Library brings together resources designed for caregivers and family members. Each resource is clearly labeled to distinguish between supporting someone with FND and supporting yourself while caregiving, so you can choose what fits your role and capacity.

What You Will Find Here

The resources in this section are designed to:

• support understanding of FND within family and caregiving roles
• assist with practical and relational support
• help caregivers maintain sustainable involvement over time
• recognize that caregiver wellbeing affects the quality of support

Some resources focus on how to support a loved one with FND. Others focus on maintaining your own capacity while caregiving. Both are necessary and valid.

Guides

Guides provide foundational understanding and context.

For supporting someone with FND

• Understanding FND as a Caregiver or Family Member

For caregiver self-support

• Caring for Yourself While Supporting Someone With FND

Toolkits

Toolkits offer practical approaches for everyday caregiving situations.

For supporting someone with FND

• Supporting a Loved One With FND Without Burnout

For caregiver self-support

• Setting Boundaries and Preserving Energy as a Caregiver

Planning Resources

Planning resources focus on structure, coordination, and sustainability.

For supporting someone with FND

• Planning Shared Routines and Supports With FND

For caregiver self-support

• Planning Rest, Respite, and Support for Yourself

Printable and Educational Materials

Printable and educational materials provide concise reference information that can be used independently or shared.

For supporting someone with FND

• Caregiver Reference Guide for Functional Neurological Disorder

For caregiver self-support

• Caregiver Self-Care and Capacity Checklist

Supporting Caregiving With Clarity and Sustainability

Caregiving and family support for FND are most effective when they are informed, realistic, and sustainable. Clear understanding, shared planning, and attention to personal limits help support both the person with FND and those who care for them over time.

This section is intended to support steady, respectful caregiving without creating pressure to do more than is possible.